I know that so many of you would like to have joined us in July. Videos of some of the information presented will be made available on CDs later this year.

This year, Dr. Cheryl Maslen and Jessica Kushner from Oregon Health and Science University were guests at our Conference, representing GenTAC. Their display is one of the pictures above. GenTAC is a registry sponsored by the National Institutes of Health. There are many unanswered questions about genetic factors at the root of thoracic aortic conditions such as BAVD and familial TAAD. Please visit the GenTAC website for additional information. On the Enrollment Center page, you will find contact information for Jessica Kushner at Oregon Health and Science University. 


As we continue our quest for information and answers
and share what we learn with others,
we create a climate of hope.

                                     
Sincerely,
Arlys Velebir
Chair, Board of Directors
Bicuspid Aortic Foundation



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Bicuspid Aortic Valve Disease
All aortic aneurysm
     and dissection in the chest
For families and medical professionals,
    by families and medical professionals
Creating a climate of hope, an atmosphere of caring, and a source of information for all who are touched by thoracic aortic disease and the medical professionals who care for them.
  Creating a climate of  hope
BICUSPID  AORTIC  FOUNDATION
 
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       Is Something We Create Together . . . . 
The View from Here . . .
Pictures from the
Third Annual
Conference
Who is this group of people who gathered together for two days in July?
Different age groups, different cities and states, different walks of life - what did they have in common?
Most had not met each other before, but they shared a common bond.

In some way, aortic disease in the chest has touched them.
Perhaps a climate of hope and an atmosphere of caring cannot be described - but it can be experienced.
Sessions covered a variety of topics.
Physicians, medical students, and other health  professionals gathered with patients and family members.
They soon found themselves sharing both laughter and tears. 
The search for increased understanding held out hope.
The weather was ideal, the setting beautiful, but the reason for the gathering was very  important and very serious.