I know that so many of you would like to have joined us in July. Videos of
some of the information presented will be made available on CDs later this year.
This year, Dr. Cheryl Maslen and Jessica Kushner from Oregon Health and Science University were guests at our Conference, representing GenTAC. Their display is one of the pictures above. GenTAC is a registry sponsored by the National Institutes of Health. There are many unanswered questions about genetic factors at the root of thoracic aortic conditions such as BAVD and familial TAAD. Please visit the GenTAC website for additional information. On the Enrollment Center page, you will find contact information for Jessica Kushner at Oregon Health and Science University. As we continue our quest for information and answers and share what we learn with others, we create a climate of hope. Sincerely, Arlys Velebir Chair, Board of Directors Bicuspid Aortic Foundation Contact Us Bicuspid Aortic Foundation 30100 Town Center Drive, Suite O-299 Laguna Niguel, CA 92677 Telephone Toll free in the US (888) 310-HOPE (4673) or495-0027 Fax: (949) 606-0413 Email: contactus@bicuspidfoundation.com Copyright © 2004 - 2008, Bicuspid Aortic Foundation. All Rights Reserved. The Bicuspid Aortic Foundation recognizes the importance of maintaining the privacy of individuals who use its web site. In using the Bicuspid Aortic Foundation web site, you are agreeing to the terms of this privacy policy. If you do not wish to accept the terms of this privacy policy, please do not access the Bicuspid Aortic Foundation web site. All personal information provided to the Bicuspid Aortic Foundation will be kept confidential within the Foundation, and will not be disclosed to any third party without the permission of the individual. Email and messages sent through the web site are not secure. Therefore, personal information you transmit to the Bicuspid Aortic Foundation may be intercepted by others and is done at your own risk. The Bicuspid Aortic Foundation may contact you regarding topics of interest. If you do not wish to receive such communications, you may contact the Bicuspid Aortic Foundation and indicate that you do not wish to receive them. If at a later time you again wish to receive such information, you may indicate that by contacting the Bicuspid Aortic Foundation. The Bicuspid Aortic Foundation makes no representation whatsoever regarding the privacy policy of other web sites whose links are on the Bicuspid Foundation web site. Your usage of other web sites is entirely at your own risk. You should carefully read the privacy policies of all web sites that you visit. Please contact the Bicuspid Aortic Foundation regarding any questions you may have about this policy. The information on the Bicuspid Aortic Foundation website is provided for general informational purposes only. This information is not professional, legal, or medical advice. Any medications, products, or treatment mentioned are presented as information only and do not constitute any recommendation, approval, or endorsement. Any information is general in nature and is not a substitute for medical care. You should contact a physician or other qualified medical professional for advice about all health-related conditions. The Bicuspid Aortic Foundation, including its officers, directors, volunteers and any others acting on its behalf, individually and collectively, make no representations or warranties, expressed or implied, regarding the contents of this website, including its accuracy, completeness, or reliability. Any links or references to other websites provided on the Bicuspid Aortic Foundation website are made available as a convenience only. The Bicuspid Aortic Foundation has not reviewed all of the websites linked to this website and is not responsible for the content of these sites or your use of them. |
Bicuspid Aortic Valve Disease |
All aortic aneurysm and dissection in the chest |
For families and medical professionals, by families and medical professionals |
Creating a climate of hope, an atmosphere of caring, and a source of information for
all who are touched by thoracic aortic disease and the medical professionals
who care for them. |
 |
|
|
Creating a climate of hope |
BICUSPID AORTIC FOUNDATION |
|
|
|
Is Something We Create Together . . . .
|
|
The View from Here . . . Pictures from the Third Annual Conference |
Who is this group of people who gathered together for two days in July? |
Different age groups, different cities and states, different walks of life - what
did they have in common? |
Most had not met each other before, but they shared a common bond. In some way, aortic disease in the chest has touched them. |
Perhaps a climate of hope and an atmosphere of caring cannot be described - but it
can be experienced. |
Sessions covered a variety of topics. |
Physicians, medical students, and other health professionals gathered with
patients and family members. |
They soon found themselves sharing both laughter and tears. |
The search for increased understanding held out hope. |
The weather was ideal, the setting beautiful, but the reason for the gathering was
very important and very serious. |
