November 2006

Recently I spoke with someone whose young son has just been diagnosed with a bicuspid aortic valve. I heard again the words I hear much too often, "I feel so all alone."

I have been in that lonely place more than once, where I understood so little myself and feared so much for my loved one. It is one very important reason for the existence of the Bicuspid Aortic Foundation: no one should cope with BAVD or TAAD alone. There is no need for that when there can be information, compassion, expertise, and care for ourselves and our families.

The scenes above are from the Foundation's September 2006 Awareness activities in southern California. We are in the process of planning additional offerings and events.

If you have suggestions regarding events or services that would be helpful to you, we welcome your thoughts.

Please check back for updates as the Foundation announces upcoming plans. And thank you to all our volunteers and supporters who help us fulfill our mission.
 
      In sharing with others, you are creating a climate of hope.

                                     
Sincerely,
Arlys Velebir
Chair, Board of Directors
Bicuspid Aortic Foundation



Contact Us
Bicuspid Aortic Foundation
30100 Town Center Drive, Suite O-299
Laguna Niguel, CA  92677

Telephone
Toll free in the US  (888) 310-HOPE (4673)
or495-0027

Fax: (949) 606-0413

Email: contactus@bicuspidfoundation.com

  

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Bicuspid Aortic Valve Disease
All aortic aneurysm
     and dissection in the chest
For families and medical professionals,
    by families and medical professionals
Creating a climate of hope, an atmosphere of caring, and a source of information for all who are touched by thoracic aortic disease and the medical professionals who care for them.
  Creating a climate of  hope
BICUSPID  AORTIC  FOUNDATION
 
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       Is Something We Create Together . . . . 
We Have Found Each Other Along the Way, 
Chris Svensson stands between the woman who made her bovine pericardial bioprosthetic valve and her surgeon, Dr. Raissi
Now We Are Not Alone . . . .
John Johnston with the women who made his bovine pericardial  bioprosthetic heart valve
And There are Things that We Can Share . . .
A Listening Ear
We Can Create a Climate of Hope for Someone Who Needs Us Today
Dianna Rose, surrounded by the women who made her bovine pericardial  bioprosthetic heart valve, and her surgeon, Dr. Raissi
A Comforting Smile
Hugs to Brighten
the Day